I’m not abandoning this blog, but I am trying out something new. Caring Bridge lets you keep a journal to update folks on how you are doing. It also has a calendar when I can request rides, meals, etc. Since I’m not driving right now, I need more help than usual.
I am taking a break from T-DM1 and going to spend some time on just Herceptin and Falslodex. Faslodex is injectable and it is supposed to block the estrogens from helping my cancer grow. Now, no other hormonals I have taken have ever worked for me, so I’m not totally confident in this one. But we will be scanning every 2 months and if the cancer acts up, I’ll go back on the chemo.
I need a break because it just has gotten overwhelming. I’m so tired all of the time and there is so much pain. The worst pain has been in my low back and around the tailbone. I want to use this break to get the pain under control and get some good sleep. I’m seeing a Palliative Care Team that is wonderful and the first drug is working. But it is long-acting morphine and it makes me feel really stoned and out of it. As my body adjusts those side effects are going away. Hopefully I will be able to get back in the driver’s seat soon.
If you want to check out the new site and scan the planner to see if there is anything you would be able to help me with, please do! You do have create a login to post.