Summer is Over

I’ve been struggling the last several months, the Kadcycla side effects got worse and worse and my body is so worn out. I did get some relief from Palliative Care and learned more about how they can support me. I’m on long-acting Morphine now daily to manage pain, and I’m taking Ritalin every morning so I can stay up most of the day. Otherwise, I sleep about 20 hours a night.

My markers are rising any I started showing some signs of allergic reaction to the Kadcycla, so we are onto a new plan. Tomorrow I start Abraxane and Herceptin. Abraxane is a chemotherapy in the taxane family. My very first chemo was Taxol, this is the same drug but it’s in a different suspension liquid and so steroids are not required with it. I’m very happy about that!

I’ll be going in for infusion every Wednesday, three weeks on and one week off. That means more time at SCCA, but at least the infusions are only a half hour each. With blood draw, waiting for the drug to be mixed and delivered by the pharmacy, etc., my trips to SCCA will probably be about 3 hours each time. If they are behind at the pharmacy, sometimes it will be 4 or 5 hours. But still, not a full day and then I can come home and snuggle with my sweet dogs.

Today I am trying to catch up on things (like this blog!) and prepare as much as I can. It’s the only thing I can control, so I spend my time organizing groceries, making sure I have all the meds I could possibly need, doing laundry, etc. I’ve gone a little crazy buying new fall clothes, but I’ve lost 40lbs on Kadcycla and need new things that fit. I’ve also got all of my scarves and hats ready. I should keep my hair for 2-3 weeks after we start the drug, I think last time it was about 3 weeks.

Fingers crossed that Abraxane works and side effects are minimal. Send good thoughts, please!

4 thoughts on “Summer is Over”

  1. Hi Karen, my mom Nancy has been keeping me in the loop by for forwarding me your blog. Just thought I’d share with you that there are many unseen angels aND spirt guides around you! I will continue sending you love & light through Reiki energy ( I am a veteran Massage Therapist of 20 years) It sounds like you are living your life in courage and faith! Thank you for thatπŸ’œ
    Much love and happiness as you continue to fight.

    πŸ•πŸΆπŸ©
    Michele

  2. Karen, I have my fingers and toes crossed..Sending you love, support, admiration and a puppy if i had one. You are my hero and continue to amaze on this journey you have been given. Not asked for but handled with strength and grace. I love you to the moon and back..
    Aunt Sue

  3. Karen, we are all puling for you in this desperate fight against cancer. Please know that you are in our prayers every day. Maggie

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s