I’ve been struggling the last several months, the Kadcycla side effects got worse and worse and my body is so worn out. I did get some relief from Palliative Care and learned more about how they can support me. I’m on long-acting Morphine now daily to manage pain, and I’m taking Ritalin every morning so I can stay up most of the day. Otherwise, I sleep about 20 hours a night.
My markers are rising any I started showing some signs of allergic reaction to the Kadcycla, so we are onto a new plan. Tomorrow I start Abraxane and Herceptin. Abraxane is a chemotherapy in the taxane family. My very first chemo was Taxol, this is the same drug but it’s in a different suspension liquid and so steroids are not required with it. I’m very happy about that!
I’ll be going in for infusion every Wednesday, three weeks on and one week off. That means more time at SCCA, but at least the infusions are only a half hour each. With blood draw, waiting for the drug to be mixed and delivered by the pharmacy, etc., my trips to SCCA will probably be about 3 hours each time. If they are behind at the pharmacy, sometimes it will be 4 or 5 hours. But still, not a full day and then I can come home and snuggle with my sweet dogs.
Today I am trying to catch up on things (like this blog!) and prepare as much as I can. It’s the only thing I can control, so I spend my time organizing groceries, making sure I have all the meds I could possibly need, doing laundry, etc. I’ve gone a little crazy buying new fall clothes, but I’ve lost 40lbs on Kadcycla and need new things that fit. I’ve also got all of my scarves and hats ready. I should keep my hair for 2-3 weeks after we start the drug, I think last time it was about 3 weeks.
Fingers crossed that Abraxane works and side effects are minimal. Send good thoughts, please!